U.S. senators Tom Udall and Jeff Bingaman introduced a bill in Congress to create a “Center of Excellence” research program at the University of New Mexico (UNM) for cavernous angioma.
Cavernous angioma is a rare, genetic brain disease that disproportionately affects New Mexicans whose ancestors arrived from Mexico and Spain more than 200 years ago.
Approximately 1.5 million Americans have been diagnosed with cavernous angioma, most of them in New Mexico. It causes hemorrhage-prone blood vessel lesions, triggering seizures, stroke and death in children and adults.
There is no known cure.
UNM Hospital and the UNM medical school are home to several leading experts in the disease, including pediatric neurologist Leslie Morrison.
Early symptoms include severe, recurrent headaches. Many doctors are unfamiliar with the disease, complicating diagnosis.
“The new center will give hope to those affected by cavernous angioma by consolidating resources and facilitating collaboration among researchers and doctors,” Udall said Monday.
Recognition as a National Institutes of Health (NIH)-designated Center of Excellence would make the university eligible for federal funding to pursue cavernous angioma research.